We've been going along here as if nothing unusual is about to happen, the steroids have given him more energy than he has had for a while and lots of jobs have been done but we haven't had time to sort out so many things.... car repairs, garage roof repair, I've not even learned how to use the ride-on mower yet. The sale of the bungalow is almost complete but not quite, Colin's County Council work pension is being processed but hasn't come through yet. So many things in the pipeline.
Then we got the phone call to say Colin has been approved to have the new cancer tablets...... next week. These are some that have only become available this year and haven't even finished their trials. They've been cleared for use with CLL lymphoma in the States with good results but not tested fully on Mantle Cell lymphoma, which is what Colin has but the drug company are permitting them to be used under compassionate licence.
Suddenly we realise this is real, make or break. These tablets proved fatal to some people when they were first trialed as they were given in a high dose straight away. Now they introduce them slowly with lots of fluids to take away the toxins, so patients are monitored closely for several days, just in case.
He's signed the consent forms, one of the list of possible effects which we have to understand is Death.
If they work he then has to go through the donor stem cell treatment later with all the risks of rejection.
As they say.......... OMG
Back when I've got my head round the implications